NBS Related Links

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Awareness & Advocacy Orgs.
Save Babies Through Screening Foundation


Family support groups & info Forums
Argininosuccinic Aciduria (ASA)
CAH, Cares Foundation
Congenital Heart Disease Info & Resourse
FOD Family Support Group
Galactosemia Organization
Glutaric Acidemia, Intl Organization
MSUD Family Support Group
Organic Acidemia Association
PKU & Allied Disord, Natl Coalition
Propionic Acidemia Foundation (PAF)
Sickle Cell Disease Association
Urea Cycle Disorders Foundation, Natl

Baby Center - info & advocacy forum
Genetic Alliance
James Lazzaro Foundation
March of Dimes


Research Info for Volunteers
Birth of Newborn Screening

Collects NBS Info for the devloping...
Disorder Information
Follow Bills through House & Senate
WA NBSAC Recommendations
Galt Info from WA State
NeoNatal Screening for IEMs
PacNoRGG Publications - Metabolics
Tandem MS, A Layman's Guide
What does your state screen for?
 Other help for families
Bridges 4 Kids
Children's Miracle Network
Educating Parents of Extra Special Child..
Family Voices, by state info
GeneLetter, online newsletter
Make-A-Wish Foundation
Mercy Medical Airlift/Angel Flight
METDNA - Financial help for families
Prenatal diagnosis info, Email for
Ross Metabolic Formulas
Sibling Support Project
Tribal Connections, Pac. Northwest


Family web pages & stories
Caleb Patric Grabow
Josh Mayfield - Site #2
Justice Quent
Ian Davies
Click here to add your webpage link
Share your story & pictures.


Memorials & Misc
Angel Babies Forever Loved, Inc
Pain, Heartache & Hope
Parents of Children With Special Needs
Indiana Specific
Pregnancy and Infant Loss
best viewed with Internet Explorer


Media, Press & Talk Show Contacts
Gebbie Press - All in one directory
Medical Reporters at Junk Science
PressLine - Media info super highway
Radio & TV Directory
Talk Shows
 Labs that offer Complete screening
PerkinElmer Genetics, Inc.

Partial Screening Labs
Baylor Health Care
Mayo Clinic

More info on the above labs


Hospital Listings
LookSmart Hospital Directory
Metabolic Cntrs Directory, National
Top 100 Hospitals


State Health Depts & Other Agencies
American Academy of Pediatrics
Health Agencies Listing by USFDA
Metabolic Dietary Disord Assoc-Australia
Natl NBS & Genetics Resource Center
Neometrics - Newborn Screening Tech
NORD - Natl Org of Rare Disorders
Office of Rare Diseases - Info on rare dis..
WA New Born Screening Program


Search Engines & DataBases
CDC (Center for Disease Control)
GEMdatabase, searchable
Natl Cntr for Biotechnology - OMIM
Orphanet - Searchable Rare Disease DB
VB/Access, what labs test for


Donate to SBTS to help save babies one foot at a time! Save Babies Through Screening Foundation, Inc.
Formerly The Tyler For Life Foundation, Inc
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Problems/comments about  the T. Rose site, please contact Terilyn.


Volunteer Home ~ Volunteer Needs ~ NBS Related Links ~ Jump ~ Eye On NBS Program


Revised 5/5/08